13th January 'In peace we will lie down and sleep; for you alone Lord, make us dwell in safety.'
At the beginning of this blog I said that I am dyslexic. Hence, writing has always been ‘work’ to me, but work that has sometimes been a compulsion. I knew at some point the compulsion would go, and I had hoped for a suitable ending. Perhaps like Cyrano I could eulogise poetically and have a dig at the foolish and pompous? Or perhaps I could look to Shakespeare? Yes, I think there lies the truth of my desired ending.
As someone who has always gravitated
to the laughing mask, rather than
the weeping one, I had hoped to end like a Twelfth
Night with a wedding.
However, what led me to this entry is more akin
to King Lear.
On 11th December I was to have the huge
privilege of conducting our beloved Ben and Nine’s Wedding. But instead
of officiating at this sacrament of joy, I found myself in hospital watching
the nuptials on an iPhone as a doctor half my age held my hand and two nurses
twice(?) my age regaled me with tales of old Hanwell and shenanigans in a bus
factory down Trumper’s Way! I cried in sorrow and grinned with joy and pride;
two masks concurrently consubstantiated on this patient’s face.
That night, the surgeons removed 18 inches of
colon and sent it to establish what horrors lie beneath.
The next few days, like Lear on his heath, I felt myself sinking
into despair and madness, desperate for true love. I have never had much truck
with Sartre’s, ‘hell is other people’, but after two days I was reaching for a
pipe and polo-neck sweater.
My Goneril and Regan were, what I
shall call, the “Dying Swan” and the “Sh1t Slinger”.
The Dying Swan in the bed opposite
me had, to quote the doctors, “nothing really medically wrong” with him. He spent his few waking hours wailing
like a deranged Greek chorus, demanding
the ministrations of nurses for such physically arduous tasks as pulling the
sheet over himself and lifting his plastic beaker.
The Sh1t Slinger, though, expressed himself as a
post-modern performance artist.
He preferred to speak in actions. The bourgeois conventions of lavatories and commodes
were clearly inhibitors to his self-expression: far better, naturally, to perform in bed. You do not
need, I assure you, the cinematic
imagination of Dali and Bunuel to realise degradation when six feet to your
left you hear phrases such as, “don’t smear it on the bed”, “it’s on your
hands”, “stop throwing it”. Never have I been so grateful for the invention of
100% polyester curtains. At the end of his
‘performance’, the Sh1t Slinger gave no word of contrition or gratitude, he
merely stated his desire to be taken outside for his cigarette. The nurses with
extraordinary charity accommodated his whim.
I lay on my heath incandescent with
rage and declare; “we cry that we
are come to this great stage of fools”.
Four weeks later, at 3.15am ‘in peace I lie down’… awake. The din of the ward has
gone. So too has Ben, as I now lay on what was once his
bed, keen that my fidgeting doesn’t disturb Sarah.
The crack in the curtain in the room frames creation in its darkness, a
darkness punctuated occasionally by a flashing blue light. Still, I lie unable to sleep not because of
pain and discomfort, but because I feel nothing.
For what feels like forever there is
no gut griping or gurgling.
For what feels like forever I am not
mulling on the big decisions in life such
as, would the immanent expulsion be gas
or solid? Nothing.
In peace I lie down. Time moves on,
and the crack in the curtain resembles the tuning process of our old black and
white Grundig 12ins portable TV. Grainy grey tones become undefined
grey neo-gothic shapes. Then, at around 5am, I see the unmistakable brickwork of my church, but still grey in the light.
In this blissful state I reflect on
light and darkness. The light and darkness of the past few months. The light
and darkness which will inevitably appear again uninvited at some point. I do
not believe in yin and yang, the ‘you can’t have one without the other’
philosophy. Neither am I convinced by C. S. Lewis in Shadowlands arguing that without pain we cannot
appreciate joy. That seems cold and systematic.
As I gaze at creation emerging with
the morning I know that, like
God, it is possible simply to be
‘well pleased’. If we are created in God’s image then we can celebrate the
light when it greets us, and remember that darkness doesn’t have the last word.
But then at 5.30am, it starts. The gurgling and groaning of pipes and
the sound of stuff being forced through unwelcoming tubes.
Nine months on, it is the sound of
the central heating switching on.
Postlude of praise & thanksgiving
I don’t know what the future will
bring, hopefully no more unexpected items in the bagging area; things are
looking good.
Thank you to all, family and
friends, who have loved and supported me, Sarah, Izzy and Alexander. Your love
and care has carried us through these months and continues(!) to do so.
Thanks must go to the medical staff
whose skill and compassion has worked wonders. Thanks also to medical friends
who have demystified jargon, advised and have, through tears and laughter, been
true reflections of the Great Physician.
Thanks to my church of St Thomas. I very
deliberately use the word ‘my’. Pious colleagues will shout in annoyance and
unison: ‘God’s church’. However, the past few months have taught me that such
sterile theological qualifications do not reflect the reality of experience.
Such a pious approach merely disconnects the people from the place. All churches,
including my St Thomas’, are places where prayers are offered, new life is
welcomed, pain is shared, unions sanctified, and
death articulated in love and hope. The whole of life is here, my life has been
here even if lymphoma had made me physically absent. Perhaps those who seek to
‘rationalise resources and assets’, confident that churches do not belong to
people but God, should remember that we see the divine in each other, not abstract objects.
Thank you to all who have prayed in
the wider Church: it has helped
more than you could imagine.
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